Published:  2015-03-21

Pain in dementia: prevalence and associated factors: protocol of a multidisciplinary study

Authors:  Janine van Kooten, Suzanne Delwel, Tarik T. Binnekade, Martin Smalbrugge, Johannes C. van der Wouden, Roberto SGM Perez, Didi Rhebergen, Wouter WA Zuurmond, Max L. Stek, Frank Lobbezoo, Cees MPM Hertogh, Erik JA Scherder

Tags:  Aged, Alzheimer’s disease, Autonomic responses, Dementia with Lewy Bodies, Frontotemporal dementia, Neuropsychiatric symptoms, Orofacial pain, Pain, Quality of life, Vascular dementia

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Pain is a common problem in people with dementia, however the exact prevalence of pain in dementia subtypes, e.g. Alzheimer’s Disease (AD), Vascular Dementia (VaD), Frontotemporal Dementia (FTD) and dementia with Lewy Bodies (DLB), is unknown, as is the relation between pain and the different subtypes of dementia. In this study, the prevalence of pain in people with dementia will be investigated per dementia subtype and the relationship between the various subtypes of dementia and the presence of specific types of pain (i.e. musculoskeletal pain, neuropathic pain and orofacial pain) will be examined. Secondly, associations between various types of pain, cognitive functioning, neuropsychiatric symptoms and quality of life in people with dementia will be examined. A third purpose is to study the value of the assessment of autonomic responses in assessing pain in people with dementia. Finally, the effect of feedback to the attending physician on the presence of pain, based on examination by investigators with backgrounds in neuropsychology, geriatric dentistry and elderly care medicine, will be evaluated.